Category: Genetic

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Support Groups/Conditions and Diseases/Genetic

Links:

• 8th International Symposium on Mucopolysaccharide and Related Diseases   [rate it] [review it]
  The 8th International Symposium on MPS and Related Diseases will be held in Mainz, Germany. Traditionally, this symposium unites scientists, patients and their parents to share and discuss recent scientific results.

• Alliance of Genetic Support Groups   [rate it] [review it]
  National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.

• Blue Cone Monochromacy   [rate it] [review it]
  A discussion board for those affected by BCM. Read the contents, search and post from this location.

• Chromosome 18 Issues   [rate it] [review it]
  A support and awareness discussion board for people affected by this disorder.

• Chromosome 22 Central   [rate it] [review it]
  Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.

• Chromosome Deletion Outreach, Inc. (CDO)   [rate it] [review it]
  Non-profit voluntary support group for families affected by rare chromosome disorders.

• Chromosome Help-Station   [rate it] [review it]
  Information on rare chromosomal disorders. Support and advice for families.

• Cornelia de Lange Syndrome (CdLS) Foundation Outreach   [rate it] [review it]
  Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

• Distal Trisomy 10q Families   [rate it] [review it]
  Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.

• Friedreichs's Ataxia Network   [rate it] [review it]
  Support group providing some answers and up to date information on local support and worldwide research being conducted. Based in Brisbane.

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