Category: DES Syndrome

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Medicine/Medical Specialties/Ob-Gyn/Obstetrics/DES Syndrome

Links:

• DES Action USA   [rate it] [review it]
  Non-profit organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals. Publishes on various aspects of DES exposure and provide a link between DES-exposed people, researchers, and the medical community.

• DES Cancer Network   [rate it] [review it]
  Organization that addresses the special needs of women who have clear cell adenocarcinoma of the vagina and/or cervix, a rare cancer linked to exposure to diethylstilbestrol before birth.

• DES Daughters Mailing List and Online Support Group   [rate it] [review it]
  Email online support group for daughters exposed to diethylstilbestrol (DES), which can result in infertility, reproductive abnormalities and other problems. Password-protected bulletin board, live chat and virtual seminars.

• DES Stories   [rate it] [review it]
  DES Stories is the first book of photos and stories of DES daughters, mothers, and sons with DES history, research, and resources. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voice, what its like to be DES-exposed.

• Health.nsw.gov - DES   [rate it] [review it]
  Information about effects and symptoms of DES.

• Images of Uterine Deformity Caused by Diethylstilbestrol Exposure   [rate it] [review it]
  Two uterine images of a 35 year old female with known history of exposure to DES. Department of Radiology, Case Western Reserve University, Cleveland, Ohio.

• Questions and Answers About DES   [rate it] [review it]
  Information from the National Cancer Institute about DES (diethylstilbestrol) and its potential effects on mothers who have taken the drug and daughters and sons who were exposed to it in utero.

• Registry for Research on Hormonal Transplacental Carcinogenesis   [rate it] [review it]
  International research registry of cancer patients with clear cell adenocarcinoma of the vagina and/or cervix or other specific gynecologic cancers who may or may not have been exposed to diethylstilbestrol (DES) or other synthetic hormones in utero.

• Testimony on DES   [rate it] [review it]
  Stephanie Kanarek's testimony before the US House Judiciary Committee on the effects of diethylstilbestrol.