Category: Orgainizations, Associations and Societies

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Conditions and Diseases/Genetic Disorders/Cystic Fibrosis/Orgainizations, Associations and Societies

Links:

• Cochrane Cystic Fibrosis & Genetic Disorders Review Group at the Dept of Child Health: 1   [rate it] [review it]
  Cochrane Cystic Fibrosis & Genetic Disorders Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.

• Cystic Fibrosis European Network, cfnetwork   [rate it] [review it]
  The European network brings together all parties involved in the same quest, the fight against CF, with the aim of making information more easily available to everybody. The Thematic Network on CF creates a unique platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, ethical, legal and IPR experts and representatives of the industry. This European Forum for cystic fibrosis, wherein all involved, interact, exchange and collaborate to achieve the same goals.

• Cystic Fibrosis Nurses: the International Specialist Group   [rate it] [review it]
  Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.

• Cystic Fibrosis Victoria Inc   [rate it] [review it]
  Information about Cystic Fibrosis and the organisation, online chat room and message board.

• Cystic Fibrosis Victoria Inc   [rate it] [review it]
  Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events

• Cystic Fibrosis Worldwide   [rate it] [review it]
  International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.

• European Cystic Fibrosis Society   [rate it] [review it]
  ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis

• I.C.F.M.A.   [rate it] [review it]
  A not-for-profit organization for increasing cystic fibrosis awareness.

• International Cystic Fibrosis Association International Directoy   [rate it] [review it]
  International Directory available for download and viewing.