Category: Pierre Robin Syndrome

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Conditions and Diseases/Rare Disorders/Pierre Robin Syndrome

Links:

• Chase's Story   [rate it] [review it]
  Personal account of one child's experience of this condition. Includes photographs.

• Contact a Family: Pierre Robin Syndrome   [rate it] [review it]
  Main features of the condition and possible causes.

• NORD - Pierre Robin Syndrome   [rate it] [review it]
  Sample report, plus links to organisations. [Fee required for full report]

• Pierre Robin Network   [rate it] [review it]
  Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.