Category: Barth Syndrome

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Conditions and Diseases/Rare Disorders/Barth Syndrome

Links:

• Barth Syndrome Family Network   [rate it] [review it]
  Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources.

• Barth Syndrome Foundation   [rate it] [review it]
  Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.

• Clinical Mass Spectrometry Laboratory   [rate it] [review it]
  An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.